Palliative Care Needs of Children With Rare Diseases and Their Families

Clinical trial NCT06938542 · ENROLLING_BY_INVITATION

Trial details

NCT number: NCT06938542
Sponsor: Children's National Research Institute
Status: ENROLLING_BY_INVITATION
Phase: Not Applicable
Study type: INTERVENTIONAL

Trisomy 13 Syndrome Arthrogryposis Congenita Multiplex With Intestinal Atresia Asparagine Synthetase Deficiency CHARGE Syndrome Early Infantile Epileptic Encephalopathy FOXG1 Syndrome KBG Syndrome Noonan Syndrome Severe Hemophilia A Short Bowel Syndrome Beta-Propeller Protein-Associated Neurodegeneration Brain Injury of Prematurity With Periventricular Leukomalacia

Start date: 2025-10-02
Primary completion: 2029-02-02
Enrollment: 480

View on ClinicalTrials.gov

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